中国麻风皮肤病杂志 ›› 2025, Vol. 41 ›› Issue (5): 348-350.doi: 10.12144/zgmfskin202505348

• 论著 • 上一篇    下一篇

临沂市麻风愈后存活者现状调查与生活质量分析

张永余1,宋传学2,杨鲲鹏2   

  1. 1临沂市莒南县疾病预防控制中心，山东临沂，276600；2临沂市皮肤病防治所，山东临沂，276000
  • 出版日期:2025-05-15 发布日期:2025-05-15

Cross-sectional study on the status and quality of life of leprosy survivors in Linyi City

ZHANG Yongyu1, SONG Chuanxue2, YANG Kunpeng2   

  1. 1 Junan Center for Diseases Control and Prevention, Linyi 276600，China; 2 Linyi Dermatology Prevention and Treatment Center, Linyi 276000，China
  • Online:2025-05-15 Published:2025-05-15

PDF (PC)

9

摘要： 目的：调查临沂市麻风愈后存活者的一般情况和生活质量并分析影响因素。方法：在全国麻风病管理信息系统收集2023年1~12月临沂市麻风愈后存活者。使用自行设计的麻风愈后存活者现况调查问卷、世界卫生组织生活质量测定量表（WHOQOL-BREF）开展横断面调查，调查内容包括人口学信息、畸残情况、劳动能力、医保、年收入等。结果：共发放问卷及量表560份，收回有效问卷及量表519份。519例临沂市麻风愈后存活者生理、心理和社会维度评分低于普通人群，差异有统计学意义（P＜0.05）。年龄小、已婚、学历高、有全职工作、无畸残、收入高、有医保、有劳动能力的麻风愈后存活者WHOQOL-BREF各维度评分较高（P＜0.05）。临沂市麻风愈后存活者61.08%有畸残、49.52%生活不能自理，生活质量较低。结论：麻风愈后存活者生活质量较正常人低，年龄大、畸残重、自理能力差、收入少、无业、未婚、学历低的人群生活质量越低。

关键词: 麻风愈后存活者, 生活质量, 影响因素

Abstract: Objective: To investigate the quality of life of survivors after leprosy recovery in Linyi and analyze the influencing factors. Methods: From January to December 2023, the leprosy survivors in Linyi City were collected from the National Leprosy Management Information System. A cross-sectional survey was conducted using a self-designed questionnaire on the current situation of leprosy survivors and the World Health Organization Quality of Life Instrument (WHOQOL-BREF). The contents of the survey included demographic information, disability, labor ability, medical insurance, and annual income. Results: 560 questionnaires and scales were sent out, and 519 valid questionnaires and scales were collected. The scores of physical, psychological and social dimensions of 519 leprosy survivors in Linyi City were lower than those of the general population, and the difference was statistically significant (P＜0.05). The scores of all dimensions of WHOQOL-BREF were higher in the leprosy survivors who were younger, married, with higher education, with full-time employment, without disability, with higher income, with medical insurance, and with the ability to work (P＜0.05). In Linyi City, 61.08% of the leprosy survivors had deformities and 49.52% could not take care of themselves, with a low quality of life. Conclusion: The quality of life of leprosy survivors is lower than that of normal people, and the quality of life is lower in people who are older, disabled, poor self-care ability, low income, unemployed, unmarried and low education level.

Key words: leprosy survivors, quality of life, influencing factors